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Cystic Fibrosis Week at the ATS

Cystic Fibrosis Week at the ATS 2012

Cystic Fibrosis Week at the ATS

Welcome to Cystic Fibrosis Week at the ATS!

It is our pleasure to introduce cystic fibrosis, which is the focus of this installment of "Lung Disease Week at the ATS," and highlight recent advances to treat this progressive, suppurative lung disease.

The American Thoracic Society and the Cystic Fibrosis Foundation have long advocated for greater federal and local support for research, education, and development of new resources to aid children and their families.  Together, we recently held a congressional briefing on Capitol Hill and encouraged greater support for research in cystic fibrosis and other childhood lung diseases.

Established in 1955, the Cystic Fibrosis Foundation has supported a nationwide care center network and patient registry, which has served as a model for effective multidisciplinary care of chronic disease and the application of continuous quality improvement. The Foundation has generously funded clinical and basic research to define the pathogenesis of cystic fibrosis lung disease and lead the search for a cure.  It created the Therapeutic Development Network; a multicenter clinical trial network that has brought promising treatments to patients with cystic fibrosis.  These advances have provided hope to families that their children will have longer and healthier lives, but today, cystic fibrosis is a life-shortening disease and more work needs to be done.

We welcome "Cystic Fibrosis Week at the ATS" and our partnership in this awareness campaign.  We look forward to sharing information that will help guide families, advance research, and support clinicians and allied health professionals in their efforts to cure cystic fibrosis

tferkol

Thomas Ferkol, MD            
Vice President
American Thoracic Society

beth

Beth Sufian, JD
Manager, CF Legal Information Hotline
Cystic Fibrosis Foundation
ATS Public Advisory Roundtable

ATS Cystic Fibrosis Partner – Cystic Fibrosis Foundation

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When the Cystic Fibrosis Foundation was established in 1955, most children did not live to attend elementary school. Today, the predicted median age of survival is in the mid-30s, thanks - in large part - to the care provided though the national network of CF Foundation-accredited centers. The CF Foundation is also a world leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure. The Foundation funds and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease.

 

Disclaimer: "The ATS Lung Disease Week Web site is designed for educational purposes only. You should not rely on this information as a substitute for personal medical attention, a diagnosis from a physician, or direct medical care.  If you are concerned about your health or that of a family member, please consult your family's healthcare provider immediately. Do not wait for a response from our members, staff or partners."