HPS Patient Stories
HPS members’ stories.
For more information click here
HPS Members Photos Click here to see HPS member photos
See the video "HPS 101 - An Introduction to Hermansky-Pudlak Syndrome." In this short video Dr. Samuel Seward answers some basic questions about HPS. Click here
Clinical Trials Info Clinical trials are medical research studies in which people participate as volunteers and are one way of developing new treatments and medications for rare diseases like HPS. Click here for more information.
ATS Patient Information Series - What is Hermansky-Pudlak Syndrome
The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org).
The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of
one’s personal health care provider.
To access this document click here
ATS "Breathing in America" book
The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures.
For Chapter on Rare Lung Diseases Click here
HPS Educational Resources
Find validated HPS education resources for patients of all ages