ATS Public Advisory Roundtable E-Newsletter
Who's Who in PAR
October, 2006 - Vol 1, Issue 1
In This Issue
 
Our Newest Members
Greetings!

Welcome to the ATS Public Advisory Roundtable's first monthly online newsletter. In this first newsletter, we would like to introduce you to the organization members of PAR. In future newsletters, we hope to keep you up to date on current issues related to ATS Public Advisory Roundtable.

The ATS Public Advisory Roundtable (ATS PAR) represents a core component of the Society and a mutually beneficial partnership wherein organizations that represent persons affected by respiratory diseases, sleep-related conditions, or critical illnesses collaborate to advance their shared educational, research, patient care, and advocacy missions. ATS PAR brings the patient's perspective to the Society and provides the Board with strategic guidance for retaining patients and families as a central focus of all ATS activities and programs.

The Alpha-1 Foundation is a not-for-profit organization founded by individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1). The Alpha-1 Foundation is dedicated to providing the leadership and resources necessary to increase research, improve health, expand worldwide detection and effect a cure for Alpha-1.
The mission of the American Lung Association is to prevent lung disease and promote lung health. The American Lung Association (ALA) is the oldest voluntary health organization in the United States, with a national office and constituent and affiliate associations around the country. The American Lung Association has many programs and strategies for fighting lung disease with a special emphasis on asthma, tobacco control and environmental health.
The ARDS Foundation is a National Not for Profit Organization composed of a group of individuals who have been personally affected by ARDS (acute respiratory distress syndrome). We are dedicated to increasing public awareness, education, and financial assistance to those engaged in medical research.
The Asthma and Allergy Foundation of America (AAFA), a not-for-profit organization for people with asthma and allergies. AAFA provides practical information, community based services and support. AAFA develops health education, organizes state and national advocacy efforts and funds research to find better treatments and cures.
Founded by seven COPD patients, COPD-International is a nonprofit organization whose purpose is to provide information and interactive support for COPD patients, caregivers, families and concerned individuals. At COPD International, you will not be alone.
The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorder such as Chediak Higashi Syndrome.
The Lung Cancer Alliance is the only national non-profit organization dedicated solely to patient support and advocacy for those living with lung cancer and those at risk for the disease.
The National Sleep Foundation is an independent nonprofit organization dedicated to improving public health and safety by achieving public understanding of sleep and sleep disorders, and by supporting public education, sleep-related research, and advocacy.
The mission of the Pulmonary Hypertension Association (PHA) is to provide hope, support and education; to promote awareness in the general public and advocate for the pulmonary hypertension community, while funding research for a cure. PHA is especially interested in educating pulmonologists and cardiologists about pulmonary hypertension to facilitate earlier, accurate diagnosis of patients. Education of patients/families and the general public also has high priority.
The Sarcoidosis Research Institute is an innovative and effective humanitarian organization committed to collaborative efforts in the areas of research, patient and professional education and patient-related issues.

Thank you for your continued support of ATS Public Advisory Roundtable.

Sincerely, Members of ATS Public Advisory Roundtable
Eileen Zacharias
ATS Public Advisory Roundtable