Cystic Fibrosis

HomePatientsLung Disease Week at the ATS2013 ▶ Cystic Fibrosis
Cystic Fibrosis

Cystic Fibrosis Week

Welcome to Cystic Fibrosis Week at the ATS!

It is my pleasure to introduce cystic fibrosis, which is the focus of this installment of "Lung Disease Week at the ATS," and highlight recent advances to treat this disease.

Established in 1955, the Cystic Fibrosis Foundation has long supported a nationwide care center network and patient registry, which has served as a model for effective multidisciplinary treatment of chronic disease and continuous quality improvement in health care. The Foundation has generously funded clinical and basic research to define the pathogenesis of cystic fibrosis lung disease and lead the search for a cure.  It created the Therapeutic Development Network; a multicenter clinical trial network that has brought promising treatments to patients with cystic fibrosis.  These advances have provided hope to families that their children will have longer and healthier lives.  Indeed, early diagnosis, timely interventions, and newer mutation-based treatment options have led to some to consider what was unthinkable only a few years ago—the prevention of CF lung disease.  Nevertheless, cystic fibrosis is still a life-shortening disease and more work needs to be done.

The American Thoracic Society and the Cystic Fibrosis Foundation have long advocated for greater federal and local support for research, education, and development of new resources to aid children and their families.  We welcome "Cystic Fibrosis Week at the ATS" and our partnership in this awareness campaign.  We look forward to sharing information that will help guide families, advance research, and support clinicians and allied health professionals in their efforts to cure cystic fibrosis.

Thomas Ferkol, MD

Thomas Ferkol, MD
American Thoracic Society
Member, ATS Board of Directors

Debbie Castro

Beth Sufian, JD
Director, CF Legal Information Hotline
Cystic Fibrosis Foundation
Member, ATS Public Advisory Roundtable

ATS Cystic Fibrosis Partner – Cystic Fibrosis Foundation

Cystic Fibrosis

A nonprofit, donor-supported organization, the Cystic Fibrosis Foundation is a  leader in the search for a cure for cystic fibrosis (CF), in funding lifesaving research and in working to provide access to quality, specialized care and effective treatments for those living with the disease. When the CF Foundation was established in 1955, most children did not live to attend elementary school. Today, people with CF are living into their 30s, 40s and beyond, and research to find a cure is more promising than ever before. Nearly every CF drug available today was made possible because of the CF Foundation’s support.

Through its “venture philanthropy” strategy of drug development, the CF Foundation has raised and invested hundreds of millions of dollars to help develop CF therapies and maintains a robust pipeline of potential treatments that target the disease from every angle.

The CF Foundation also supports and accredits a national network of over 110 care centers that provide comprehensive, specialized care to more than 27,000 children and adults with CF. The care center network has been recognized by the National Institutes of Health as a model of care for a chronic disease. In addition, the CF Foundation’s patient registry tracks the health and treatment of those receiving care at its care centers, allowing caregivers and researchers to identify new health trends, design CF clinical trials and improve the quality of CF care.