Hermansky-Pudlak Syndrome

HomePatientsLung Disease Week at the ATS2019Hermansky-Pudlak Syndrome ▶ Information for Patients
Information for Patients


lung Information for Patients

The Stories of People with HPS

Read some of the stories of people living with Hermansky-Pudlak Syndrome.

HPS Network Conferences

The HPS Network hosts an annual conference every year for families affected by the syndrome. The conference offers education about the disorder as well as fun and social events.

HPS Online Community

Meet others affected by HPS in similiar situations, whether you are the parent of a child with HPS or an adult with HPS.

HPS Network Newsroom

Keep up with the latest news about Hermansky-Pudlak syndeom, the HPS patient community, and the HPS Network.

Patient Fact Sheets

ATS Breathing in America Book

The Breathing in America: Diseases, Progress, and Hope compilationbriefly describes respiratory diseases and the progress that is being made in the quest to find their cures. Click here to find the chapter on Rare Lung Diseases.